Going to a support group ....

I resisted going to a support group. The thought of being in a room full of other sad people sounded depressing to me. I also was afraid that I would break down and cry -- which terrified me.

Monica and I didn't really argue, but we sure didn't agree as to whether we should go. Finally I agreed to go to one session, with the understanding that if I didn't like it, I wouldn't go back.

I was very nervous that first night, but relieved to see several other dads. Luckily for me, the man next to me spoke first about his loss and where he was at. As he spoke, he broke down and sobbed. He didn't even attempt to hold back. To my amazement, no one went running out the room, laughed at him, or in any way showed anything but sympathy and understanding toward him. That was a turning point for me, because I thought if he could do that, I wouldn't be afraid to. The support group became a place I looked forward to going -- not only because we made wonderful friends, but it was the one place I could let down and did not need to hold back. That man's tears were one of the greatest gifts I got at that time.

How about you? Did you go to a group? If so, how was it? If you didn't, do you regret it? Did your decision either way cause disagreements with your partner?

This is a big stumbling block for lots of guys. Let's give them some information to help them decide how they want to move forward. Thanks

Meaningful Keepsakes....

Hey guys, someone asked me today what I thought father's would like for Father's Day as a remembrance of their child that died. Anyone have suggestions? Are there some of you who would rather not have that acknowledged? If so, maybe share why it would be hard. Thanks!

nice YouTube song

Check out this song sent to me. It's entitled Smallest, Wingless, by Craig Cardiff.

You might have to cut and paste the link.

http://www.youtube.com/watch?v=WxcLm4ZA45E

Faith's Lodge Retreat Center

I want to make sure you are aware of a beautiful retreat center in Northcentral Wisconsin. Faith's Lodge is a new facility specifically built for families who have a seriously ill child or who have had a child die. I attended the grand opening and can tell you that it's an absolutely gorgeous facility. The cost for staying at the lodge is extremely reasonable, but certain criteria must be met to go there. Below I have included some descriptive text from the Faith's Lodge web site as well as a link, so please check it out.

On May 8 and 9, 2009, Sherokee Ilse and I will be doing a program at the lodge for grieving couples. Sherokee and I recently published a book entitled "Couple Communication -- After a Baby Dies. Differing Perspectives," which addresses some of the issues we faced in our respective relationships with our spouses following our losses. During the workshop, we will be drawing on information from the book and hope to make the time at the retreat one of growing and healing for bereaved families. We hope you can join us.

Faith’s Lodge is a unique retreat for families who currently have a seriously ill child or have suffered the loss of a child. Located on 80 picturesque acres in the Northwoods of Wisconsin, Faith’s Lodge has eight individually designed guest suites that can each accommodate up to six people. Two suites adjoin to accommodate larger families and are handicapped accessible.

The mission of Faith's Lodge is to provide a place where parents and families facing the serious illness or death of a child can retreat to reflect on the past, renew strength for the present, and build hope for the future.

In its Northwoods setting, Faith’s Lodge provides temporary respite for guests by offering them a peaceful escape to refresh their minds and spirits, while spending time with others who understand what they are experiencing.

http://www.faithslodge.org/index.asp

Trying to control the uncontrollable.....

Thinking back, I realize now that much of my behavior in the early hours after finding out that our daughter was dead, was the result of my need to stay in control. Throughout my life, I had come to believe that staying in control of situations and my life represented strength and the path to success.

I believed that staying focused on school work and doing my best would mean that I got into a good college, and eventually landed a job that made me good money and earned me the respect of my family and peers. To a large extent, I still believe that to be true. What I did not realize at the time, was that there were situations in life I could not control.

Even though I seemed to be living the American dream by doing well in school, graduating from a good college, starting my own business, marrying my high school sweetheart, buying a home, and starting a family after 5 years of marriage -- I could not stop my daughter from dying.

There was no preparing me for facing that reality. When I found out that our baby was dead, life as I knew it began to unravel. My first thought was that my "secrets" had finally caught up with me. Maybe the college partying had taken more of a toll than I realized. Maybe God was punishing me for thoughts that I had had or lies I had told.

When the guilt set in, I tried all that much harder to control what I could. I would not allow myself to cry -- therefore I avoided situations that might make me cry. I hurried along our time alone with Kathleen because I feared the longer I was with her, the harder it would be to say goodbye. I chose to let the hospital handle her remains, because I could not fathom going to her funeral. I didn't want to have a lot of family around at the hospital because I didn't want them to see me so vulnerable.

In other words, I was out of control. When the feelings of fear and sadness blended together, my behavior made it seem like I cared much less than I did. I think it's for this reason that I always point out to moms that they need to be careful not to judge their partner's feelings by their behavior. The old, "you can't judge a book by it's cover," adage rings real true in circumstances like these -- especially for men.

The really hard part is -- sometimes we don't even know why we are reacting the way we are. We are just following our instincts on a path we've never traveled before.

Make Decisions Together!

Sometimes in the moment of chaos and hurt, men will attempt make decisions for their spouse/partner in an attempt to help protect them. I did this, and it ended up being a mistake.

When Kathleen was born in the early 1980s, people still had the option (in Minnesota, anyway) of choosing whether they wanted the hospital to handle the baby's body for burial through a funeral home they worked with or whether they wanted to do it themselves through a funeral home they hired themselves. Even though Kathleen was full term, I was not sure what was acceptable. All I knew was that I was overwhelmed with sadness, scared to death of having a funeral where I would either cry or no one would show up, and wanting to protect Monica from having to make that decision. I signed the papers the hospital social worker brought me giving consent to the hospital and never asked Monica about it.

This is just one of many stories I've heard where decisions get made for noble reasons, but it can end up causing problems down the road.

Talk to each other. Don't assume. Don't take the "easy" way in an attempt to avoid your sadness. Long term, you'll likely regret it.

Any other stories? Comments?

Ladies -- feel free to ask questions

Even though this blog is intended to be a place for men to talk about how they're doing following the death of an infant, I want women to feel free to ask questions that might help them better understand their husband/partner. Sometimes just knowing that the reactions they are seeing are not necessarily unique, helps moms be able to be a little more patient and willing to approach their communication a little differently. I look forward to hearing from you.

What about the anger?

It's pretty normal to be angry following a difficult loss like that of losing a child. The question becomes, what do we do with that anger? Where do we direct it? How do we express it in a healthy way? How do we determine when it's getting out of hand and becoming destructive?

This is an important issue, guys, and one that can be dangerous to marriages if not dealt with. This is an anonymous way to talk about it, so I hope to hear from you. Thanks...

Brings back memories....

I co-lead a support group this past week at the hospital where Kathleen was born still 25-years ago. It's amazing how that pit in the stomach still recurs when I drive up to that building.

Being in a room with newly bereaved parents for a couple of hours is always bittersweet. I feel like I can give them hope just by being present so many years after our loss and showing them that life does go on and, while the emptiness never goes away, it does become more tolerable.

But, my heart breaks when I see couples questioning their relationship because of the differences they're experiencing as they move through their intense grief ... wondering if they should have another child, wondering whether their spouse is really hurting or simply moving on, trying to find the words to help begin the sometimes slow and painful process of learning to communicate and share their sadness rather than trying to make it disappear. I want so badly to just give them a road map that they can follow to get through this period intact. Knowing that they have to discover that on their own is a hard pill to swallow for someone like myself who just wants to take control and make it better.

If you read this, and are at a point similar to these newly bereaved parents, I hope you will bring yourself to share some of your hopes and fears on this site. I have little doubt that by being there for one another, your relationships can not only survive -- but actually thrive.

It may require stepping outside of your comfort zone -- but you must ask yourself whether one loss really needs to result in more losses. I say it doesn't.

Let me know what helps...

Since starting this blog, I've had some discussions with other dads about what they might find helpful in an online support resource like this blog. Several have mentioned that, while they use the internet for lots of things, they are somewhat uncomfortable using it for sharing feelings. I completely understand that and know that there will be varying opinions as to how people feel.

Do you have any suggestions as to what kind of discussion or format we might use on this blog that would feel safe and therefore make it easier to participate? I want this to be what is most helpful to the majority of you, so let me know! Thanks!